Expert Parent Programme
The Council for Disabled Children has developed an innovative training programme for parents of disabled children. Developed with funding support from Department of Health, the Expert Parent Programme draws on current evidence of the positive impact of parent led training and empowers parents of disabled children and young people to become more confident and resilient when engaging with health services.
Parents and carers are the key individuals in managing the health of disabled children, they coordinate services, act as advocates, serve as information services on top of delivering a significant proportion of their child's healthcare. Despite their responsibilities and expertise parents and carers often find negotiating the health system on behalf of their child complex, frustrating and exhausting.
The programme consists of:
- A sustainable programme of modular training directed at parents and carers of disabled children and young people;
- Comprehensive information and links to further sources of information;
- Interactive online e-learning resources for parents;
- Sign posting to existing high quality training opportunities that meet the needs of parents and carers.
Start your elearning for free here, or find the learning modules below.
Use the boxes below to find out more about the programme, including a list of trainers who can deliver the face-to-face training in your area. For more information contact Luke Nunn
The Expert Parent Program helps parents of disabled children get the best out of the health system.
A key element of the Expert Parent Carer Programme workshop is that it has been developed by parent carers who have expertise around navigating the health system. The workshop is delivered by parent carers who can share this expertise and insight to...
Information about rights, complaints and how to get involved in your local area.
Answers to common questions asked by parents of disabled children about the health service.
Other sources of health related information and support for parents of disabled children.
A introduction to how NHS services are organised and paid for parents of disabled children.
Links to other training and support parents of disabled children may find useful.
The Expert Parent Program has produced some practical guides to using the health system